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  • My New "Volunteer" Doctor

    A little background is necessary so please bear with me.

    About three years ago I suffered a series of severe asthma attacks that eventually led to me being hospitalized. For two months I struggled to breathe 24/7 thanks to my immune system taking a vacation during cold season. At the end of this time when I was coming out of the worst of it I began having agonizing pain in my legs. Since I have a very high pain tolerance and a stoic disposition I ignored it until it literally became so bad I could barely walk, even with a cane.
    Diagnosing the problem took several more months but eventually it was learned that the prednisone giving to me to help me breathe had triggered a reaction call Avascular Necrosis (a disease that literally caused parts of the bones in my knee to die). I was and am extremely lucky that it limited itself to one joint, and that I was able to stop the prednisone before it progressed furthur. However in the meantime the excruiciating pain of the bone death had caused yet another response called Chronic Regional Pain Syndrome.
    Which basically means that the pain overloaded my nerves and sent them into an endless pain loop that nothing short of directly numbing the nerves themselves can help.

    Through two years of treatments, therapy and hard work I managed to go from being unable to bear weight or tolerate any touch (CRPS makes skin hypersensitive to the point even water or strong air hurt) to being able to walk and appear normal for the most part. I still have pain, and thanks to several sever sports related injuries to that leg from high school I am likely to being in a fair amount of pain for the rest of my life (my ankle is comparable to that of a 80 year old with osteoporosis and arthiritis; several people on my medical team have expressed suprise that I am able to walk on it at all).

    So the point of all this sharing is that even without taking my severe asthma and enviomental allergies into account I am still quite authentically "disabled". Getting in and out of cars is hard for me, as well as doing to much walking so in order to keep my pain from becoming so bad I can;t do anything I use a handicap placard. Apparently this is a problem seeing as I am only 25.

    On to the incident~

    My mom and i traveled into the city to go to a doctor's appointment and on the way out we decided to swing by Arby's for lunch. I made my way to the door alone while my mom stepped off the property to have a cigarette. Approaching the door at the same time as an elderly couple I genially held the door for them.
    As he was passing through the door the old man semi turned and distastefully muttered "Ugh parking in a handicap space. Hmph!".
    Reigning in my temper I calmly replied, "You know I can produce my disability credentials."
    He probably assumed that two young females (my mom looks like a 20 year old) wouldn't have the gall to confront his passive aggressive sniping.
    Now keep in mind I in no way threatened him, nor made any conscious attempt to intimidate him. However, unconsciously when I become riled I tend to exhibit a predatory focus that unnerves people (and for good reason because when attacked or threatened I descend into a deep rage that deprives me of conscious control of my actions, resulting in people becoming hurt very badly). If you have ever seen a German Shepard or Doberman go from friendly dog to an alert, focused predator, that is what my demeanor becomes like.

    The couple had at this point continued to walk away from me, and I was content to let things go in order to avoid losing my temper, but the man just could not let it be. As he was walking away, he calls back to me, "That's not how things seem."
    Argh. Self-control won and I retreated to my calm place filled with fluffy animals and shiny things. Once sure I was not going to chew through his jugular (hey mom always said I can think/fantasize whatever I want as long as I don't do it ><) I replied "Yeah well things aren't always what they seem, now are they?".

    All this time they had been walking to ahead of me to the counter area, the same direction I happened to be going. Now other than having my temper aroused and being predatory focused on them to asses the level of threat they represented, I had done nothing other than reply to them in the above exchange.

    Still, while they remained blessedly silent at this point they started acting mortally afraid of me. Which created a very wierd experience for the cashier who looked unsure of what had happened other than the couple had pissed me off somehow and now they were cowering. Great.

    Lemme tell ya that was a wonderful lunch. Especially on a day when I was already feeling horrible and in a great deal of pain already.

    Oh and the couple was indeed lucky they had chosen to snipe at me while my mom was gone. You see moms have a very strong instinctive reaction when their "baby", especially their sick "baby" is threatened.

    In the entire scheme of things it was only a brief encounter, but having worked so hard to try and function and get through each day it really bothered me. Like it isn't hard enough being a half crippled 25 year old without having people harass me in public places.
    The best revenge is to be unlike him who performed the injury. - Marcus Aurelius
    If you're slower than me, stupider than me, and you taste good...you're dinner - Anthony Bourdain

    Memento mori.

  • #2
    Quoth aniwahya View Post
    In the entire scheme of things it was only a brief encounter, but having worked so hard to try and function and get through each day it really bothered me. Like it isn't hard enough being a half crippled 25 year old without having people harass me in public places.
    You have my complete understanding and sympathy. Invisible disabilities can be really difficult to handle, because of assumptions like that.

    I always want to say "Would you like to see my MRI?" Maybe I should some day.
    Seshat's self-help guide:
    1. Would you rather be right, or get the result you want?
    2. If you're consistently getting results you don't want, change what you do.
    3. Deal with the situation you have now, however it occurred.
    4. Accept the consequences of your decisions.

    "All I want is a pretty girl, a decent meal, and the right to shoot lightning at fools." - Anders, Dragon Age.

    Comment


    • #3
      Whenever ticketing cars parked illegally in handicap spots, I get all sorts. Some cars definetely look like grandma's car, but I can't judge. If it doesn't have a card or plate, it gets a ticket. If they are handicapped, it gets voided no problem (they only get 1-free void, this is because some people constantly forget to put their cards up) I get a lot of good samaratins who tell me that a car parked and a 'perfectly healthy young person ran into the store.' Again, I can't judge. They have a plate or card, I have to assume they're legal to park there. Maybe the person was having a good health day and was a bit jaunty going into the Store. What burns me is when A) Motorcycles park in the yellow lines between handicap spots B) Cars double-park in the yellow lines between the handicap spots (both handicap and non do this!) C) People park and idle in the spots to watch the doors for their parties, or to eat. D) Perfectly healthy people park and say 'it was only for a minute' or 'well I'm shopping for my handicap family memeber.' I've even had people who say 'well I FEEL handicap! Well, then apply for the card I'm sorry.

      I do get a little protective of those spots, but where I live has a high elderly population and every one of those spots counts.
      "If anyone wants this old box containing the broken bits of my former faith in humanity, I'll take your best offer now. You may be able to salvage a few of em' for parts..... " - Quote by Argabarga

      Comment


      • #4
        Quoth LillFilly View Post
        I've even had people who say 'well I FEEL handicap! Well, then apply for the card I'm sorry.
        Those people ought to be beat within an inch of their lives, or have one of their legs sawed off.

        Then maybe they can begin to understand how it feels to be handicapped.
        Knowledge is power. Power corrupts. Study hard. Be evil.

        "I never said I wasn't a horrible person."--Me, almost daily

        Comment


        • #5
          Quoth Seshat View Post
          You have my complete understanding and sympathy. Invisible disabilities can be really difficult to handle, because of assumptions like that.

          I always want to say "Would you like to see my MRI?" Maybe I should some day.
          ...or be me for a day (which can entail getting winded going up stairs)..or....

          People are awful. You have my sympathy too. *offers comfort*
          1129. I will refrain from casting Dimension Jump and Magnificent Mansion on every police box we pass.
          -----
          http://orchidcolors.livejournal.com (A blog about everything and nothing)

          Comment


          • #6
            Quoth aniwahya View Post
            Like it isn't hard enough being a half crippled 25 year old without having people harass me in public places.
            **words of sympathy and encouragement**

            Which means, I really don't know what to say. I empathise, I sympathise. I wish stupid idiots would learn when to keep their fricking mouths shut.

            Your kind of story is precisely why I will NEVER utter a word to anyone using one of those parks legally (with the card). I don't care if it's not their card. That's a prick of a thing to do, but obviously I can't *tell* that. So it's not something I can leap to judgment on, for reasons of "invisible disabilities".

            I can only imagine how much discrimination you do face being young and therefore apparently "not entitled to be crippled". Maybe next time someone suggests something along those lines reply something like how age is not a valid disability.

            Comment


            • #7
              My mom has a handicap tag, which gets me some evil looks when I park the car in a handicap spot and then run to the front door of a store. What they didn't see is that I dropped her at the front door and she gets a headstart of the shopping or whatever we are going to do. She has degenerating discs in her back that cause great pain and numbness since they press on nerves so walking is an issue big time. So whatever I can do to help her make it through a shopping trip helps. Since she wants to get out, and I don't want to take that away from her she is as independent as she can be.

              I park in the handicap spots mostly at the grocery store since we will have a full cart when we come out, I will push the cart to the car she will walk with me out. Sometimes though she can't make it back out to the car so she finds a bench or a seat at Starbucks in the store and I push the cart out and unload then call her cell and she limps out since I have pulled around to the door. So all they ever see me who looks normal but not the handicap person that I'm driving around.

              So I tend to be very violent when people say shit to me.

              though I have called the police once for this issue and it was a chick at my old job who would leap literally out of her H2 Hummer in her 4inch heels and run in the building.. Cops talked to her and she was parking the boonies with the rest of us.. Guess it wasn't her card after all..

              Comment


              • #8
                I'm so sorry! I have something very similar to what you have, a type of asthma but it does not respond to steroids or any drugs but chemo and experimental antibody treatment. I have the handicapped plate and I get some of the same crap from others. I often wish those idiots that think because we are not in wheelchairs or with crutches could live a day in our bodies.

                Have they tried Xolair injections for your asthma? I am on them now and it's made a world of difference, much better than the chemo. I get Xolair and several different rheumo drugs and mast cell inhibitors and it's cut down on the ER visits from attacks.
                "No, I will not poop a shopping cart out for you." - Irving Patrick Freleigh

                Comment


                • #9
                  Quoth RootedPhoenix View Post
                  ...or be me for a day (which can entail getting winded going up stairs)..or....
                  I get that. It sucks when I do sometimes get tired climbing stairs, even though I'm supposed to be "young and healthy." Yeah, I'm young and healthy...but I have respiratory issues, and yes, I do walk with a limp occasionally, usually when the colder weather starts.
                  Aerodynamics are for people who can't build engines. --Enzo Ferrari

                  Comment


                  • #10
                    Sounds like this one time the DM at the Chesterfield came out of his cave, saw his shadow, and decided it was time for spring anyway, as he also saw me leaning against the counter post-giant project finish.

                    DM: *casually* "Rubi, how old are you?"
                    Me: *blink, blink* "23...?" *sounding confused*
                    DM: "Much too young to be tired."
                    Me: *seeing red, immediately* What I wanted to say: "So, how old do I have to be to have had a stroke? Whatever you think it is, you're wrong. I wasn't even 18. I get winded easily, you prick. Meanwhile, I just finished that massive movie shipment we just got. Didn't even notice that, did you?" I didn't say anything, but TK, who was over working on the toys part of the shipment, comes over after the groundhog disappeared, to say, "Well, that was terrible. I thought he was asking in relation to your request to become a manager..."
                    "I call murder on that!"

                    Comment


                    • #11
                      Quoth RootedPhoenix View Post
                      ...or be me for a day (which can entail getting winded going up stairs)..or....

                      People are awful. You have my sympathy too. *offers comfort*
                      Thanks, RootedPhoenix.

                      My best friend worries about me. She's helped me shower - with *her* doing most of the work - and watched me collapse and breathe hard afterwards. Apparently for a healthy person, the type of fatigue and winded-ness I show would be appropriate after a long run!


                      Quoth One-Fang View Post
                      I can only imagine how much discrimination you do face being young and therefore apparently "not entitled to be crippled".
                      It's awful. But it's the only reason it's kind-of good that I'm not able to be called 'young' any more.
                      Seshat's self-help guide:
                      1. Would you rather be right, or get the result you want?
                      2. If you're consistently getting results you don't want, change what you do.
                      3. Deal with the situation you have now, however it occurred.
                      4. Accept the consequences of your decisions.

                      "All I want is a pretty girl, a decent meal, and the right to shoot lightning at fools." - Anders, Dragon Age.

                      Comment


                      • #12
                        I hate the "when I was your age" crowd.Yes people I'm tired I work 40+ hours a week,take care of a house,a diabetic hubby that likes to eat bad food,take care of pets that like to misbehave,and I try to fit in at least 2 hours of working out 3-4 days a week.Yes I know I'm 29 years old but screw you,I'm tired. These are probadly the people that never had to work when they were young, they had mommy's money so yes when they were my age they were partying and being radom spoiled brats.
                        Last edited by candyshopgirl; 03-24-2009, 07:57 PM.

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                        • #13
                          I don't have a car anymore, but I never applied for a handicapped placard, even if days I could barely walk with my cane. I just stayed home on those days. I got enough shit when out with my blind best friend, who did have a placard. It was just not worth it to me. Now I ride the bus everywhere, have a disabled pass, and can kick people out of their seat if they are in one of the seats in front.(Thos seats are designated handicapped seats, some even fold up so there's a place for someone in a wheel chair.)
                          I can't stand more than a few minutes, but I can walk... usually.

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                          • #14
                            "That's not how things seem."
                            one of my friends has credentials and tags too - only you can't tell it by looking at her, cos it's a brain tumor. she doesn't use them often, just when she's expecting the possibility of the tumor playing havoc with her head. (so she can get to the car quickly & the driver can get her out)

                            but i am sure that any jerk who decided to challenge her on it would get an ear full.

                            Comment


                            • #15
                              Those people were really sucky and I have to apologize, because I have a friend who has caused problems like this for other people because of his actions. See, H's mom has a placard for a variety of reasons, and when H was living in the city, and later on when he moved out here to Sacramento he'd use it...all the time. Why? Because he didn't like having to park in a far lot of his classes at the university; because he is always running late for dinner reservations and it's easier to find placard parking; oh and because he had to have knee surgery in high school and even though it all healed and he's able to go jogging, running and bike riding, he's a special snowflake. Yeah, I know EWs; it's tough when you've been friends for half your life. So people see guys like H getting out with placards and all of a sudden all "young" people are branded as frauds.

                              If it's any consolation he doesn't do it anymore. Karma in the form of 3 tickets back to back to back by the university police bit him hard on the ass.

                              Still, I'm sorry that people like him make it harder for you.
                              A crisis is a problem you can't control. Drama is a problem you can, but won't. - Otter

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